Jenny is a 15 year old girl with a rapidly progressing sudden paralysis. Her parents are looking for answers and want to find other people just like Jenny.
This is the future of rare diseases…doctors can actually become specialists for the rarest of rare if they simply use the internet to gather all 1000 patients across the US with a super rare disease. And patients can benefit significantly from docs who have experience treating people like Jenny all day. Currently, people like Jenny are seeing docs who have only seen one or two Jennys in their career…
By the way, I’m down in Austin for SXSW. Hit me up if you want to meet up!